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society for mucopolysaccharide diseases (mps society) shop contact donate about who we are christine lavery our main achievements services we provide how we first began mps house working collaboratively international mps societies pharmaceutical links our employees current vacancies our trustees our accounts & reports our policies our donor & fundraiser promise gdpr data protection our strategy our constitution diseases mps diseases mps i mps ii mps iii mps iva & ivb mps vi mps vii mps ix fabry inheritance testing symptoms treatment living with fabry laura’s story how can we help? related diseases aspartylglycosaminuria fucosidosis geleo physic dysplasia gm-1 gangliosidosis lysosomal acid lipase deficiency mannosidosis metachromatic leukodystrophy ml i ml ii ml iii ml iv multiple sulphatase deficiency sialic acid storage disease winchester disease factsheets support register a uk sufferer newly diagnosed advocacy support service housing information benefit information challenging behaviour anaesthesia inheritance treatment enzyme replacement therapy (ert) hematopoietic stem cell transplant (hsct) campaigns a pause to changes to the nice drug evaluation process campaigns: our fight for vimizim what vimizim means to sam what vimizim means to gracie what vimizim means to kamal what vimizim means to angela what vimizim means to sarah what vimizim means to lily-may what vimizim means to harvey? vimizim testimony what’s going on with vimizim? children’s section mps magazine events & clinics specialist centres palliative, end of life and bereavement support hospices childhood wood safeguarding meet our families miya (mps i) emily (mps i) james (mps ii) oliver & sam (mpsii) caleb (mps ii) ella (mps iii) aisha (mps iv) joanne (mps iv) christian (mps iv) oliver (mps vi) sarah (ml iii) sam (ml iii) naomi (fabry) brooke (fucosidosis) megan (mannosidosis) downloads & resources useful links glossary hospice resources emergency patient information cards research current clinical trials clinical trials mps i hurler ert clinical trial mps iii genistein clinical trial meet the scientists 2006 – 2012 2001 – 2005 1996 – 2000 1991 – 1995 1984 – 1990 get involved fundraising christmas wear it wicked bake sale wear it blue mps awareness day walkabouts events calendar running events cycle events skydive for mps valentine’s day corporate fundraising pack fundraising downloads trusts and foundations community corporate school & university nurseries primary school secondary school university downloads & resources media and press volunteering how your money helps wills & legacies news mps commercial give to mps society this christmas we can’t cure mps and related diseases but we can be here for those that need us. join our christmas campaign and make sure we are here in the future. find out more mps society conference save the date for the 2019 conference on paediatric and adult perspectives in management and treatment of mps and related diseases. 28-30 june 2019 volunteers needed we need enthusiastic childcare volunteers to help at our conference weekends and expert meetings throughout the year. tell me more what can you do to help? if you want to get involved and make a difference for those living with mps download a fundraising pack, make a donation or find out more about volunteering opportunities. find out more what are mps and related diseases? if you have been affected by one of the 25 mps diseases we support, or if you would simply like to learn more, our website provides lots of information and downloadable resources. find out more what can we do to help? our advocacy support team are on hand to help affected families with anything from advice on benefits and housing to just being there to listen. find out more  volunteering our volunteers help to make our events and conferences special for children and vulnerable adults affected by mps and related diseases. read more about how to get involved in this rewarding volunteering experience  donating if you have held a fundraising event or if you would like to make a straightforward donation, take a look at the different ways that you can donate and help us make a difference today.  need support? if you or an immediate family member has been diagnosed with mps, fabry or a related disease, we are here to support you. get in contact with our advocacy support team for more information on the many ways that we can help. latest news lego masters paul and his son lewis, who has mps iva morquio, have been part of the most recent series of lego masters competing against like-minded lego creatives to be crowned best lego builders in the uk and ireland. the father and read more mps commercial are recruiting for models with mps i/ii/iii mps commercial are recruiting for models with mps i/ii/iii for a project they are working on with a pharmaceutical company. we would like to capture a series of images showing what it is like to live with an mps disorder. read more the evaluation of velmanase alfa for treating alpha-mannosidosis has been put on hold. this hst evaluation has been put on hold as of 2 october 2018. the company which markets this technology (chiesi) are currently developing an offering for submission to nhs england. once confirmation of the submission has been received nice will read more trip advise us we always want to hear from you on the best places you have found for holidays and trips away, whether they have given you the best support and guidance or just made a few suggestions along the way making the read more mps in numbers 896 individual and families supported in 2015 25 rare disease supported 3,364,628 £ given research projects between 1984-2010 × please support us and make a donation now, more than ever, your regular donations ensure that the society is able to confidently plan for the future. your donation is vital to help us continue our services supporting families and funding research into treatments for the coming year. set up a regular donation make a donation online (online donations now go via the mps society page on justgiving.com) thanks to better diagnosis and treatment, the mps society's membership continues to grow whilst at the same time, the squeeze on public spending and the government's recent changes to the benefits system have affected many of you. as a result, the number of calls to our advocacy service has risen and we want to ensure we can continue to provide the same level of care and support to all our members, wherever you are in the uk. we have come a long way, and made some big achievements thanks to your donations. see how your money will continue to help. here are some other ways you can donate: one-off donation donate in memory leaving a legacy give as you earn please support us and make a donation: donate latest tweets mps society 2 days ago spoiler alert! . . . congratulations to paul and lewis on winning series 2 of @channel4 #legomasters . it's been brilliant watching you and your fantastic creations! very well deserved. pic.twitter.com/x9lrumqlca stay updated subscribe to newsletter find us contact us 0345 389 9901 [email protected] about diseases support research get involved news mps commercial privacy policy © 2015 the society for mucopolysaccharide diseases, registered charity no. 1143472. registered as a company limited by guarantee in england & wales no. 7726882. registered office at mps house, repton place, white lion road, amersham, buckinghamshire, hp7 9lp. registered as a charity in scotland no. sco41012

URL analysis for mpssociety.org.uk

http://www.mpssociety.org.uk/get-involved/community/school-university/secondary-school/
http://www.mpssociety.org.uk/support/register-a-sufferer/
http://www.mpssociety.org.uk/about/who-are-we/
http://www.mpssociety.org.uk/research/2006-2012/
http://www.mpssociety.org.uk/support/campaigns/pause-changes-nice-drug-evaluation-process/
http://www.mpssociety.org.uk/support/campaigns/current-campaigns-our-fight-for-vimizim/
http://www.mpssociety.org.uk/support/meet-our-families/megan-mannosidosis/
http://www.mpssociety.org.uk/diseases/related-diseases/geleo-physic-dysplasia/
http://www.mpssociety.org.uk/2018/09/03/trip-advise-us/
http://www.mpssociety.org.uk/support/
http://www.mpssociety.org.uk/support/meet-our-families/miya-mps-i/
http://www.mpssociety.org.uk/support/mps-magazine/
http://www.mpssociety.org.uk/support/meet-our-families/oliver-sam-mpsii/
http://www.mpssociety.org.uk/get-involved/fundraising/events-calendar/
http://www.mpssociety.org.uk/2018/10/25/mps-commercial-recruiting-models-mps-iiiiii/
fundraisingregulator.org.uk
pilotlight.org.uk

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  ARGS mpssociety.org.uk

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DISCLAIMER
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:
Copyright Nominet UK 1996 - 2017.
You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at http://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

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  NS2.DOMAINCHECK.CO.UK 40.127.134.66

  NS1.DOMAINCHECK.CO.UK 193.108.84.4

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